Skip to main content
Exploring Epilepsy

Main navigation

  • Epilepsy 101
    • What is Epilepsy?
    • All About Seizures
    • Different Types of Seizures
    • Epilepsy Complications and Risks
    • Rare Epilepsy Syndromes
    • Genetic Testing for Epilepsy
    • Medical Conditions Connected to Epilepsy
  • Treating Your Epilepsy
    • Epilepsy Medications
    • Treatment Goals
    • Finding an Epilepsy Specialist
    • Finding the Right Treatment
    • What to Expect During Treatment
    • Managing Side Effects
    • Treatment Challenges
    • Talking to Your Care Team
  • Living With Epilepsy
    • Self-management
    • Seizure Triggers
    • Keeping Yourself Safe
    • Home and Workplace Safety
    • Quality of Life
    • Your Mental and Physical Health
    • Your Community of Support
    • Sticking to Your Plan
    • Caregiver's Corner
    • Epilepsy Stories
  • Health Education
    • Equitable Care
    • Pediatric Epilepsy
    • Epilepsy in Different Types of People
    • Health Literacy
  • Resources
    • Downloads & Tools
    • FAQ's
  • About Us
  • Materiales en Español

Breadcrumbs

  1. Home
  2. Epilepsy 101
  3. <span Class="resource-page-title1">Resources For </span><span Class="resource-page-title2">Rare Epilepsy Syndromes</span>

Resources for Rare Epilepsy Syndromes

SHARE
  • Twitter
  • Facebook
  • Linkedin

Click on these resources to learn more about rare epilepsy syndromes and help you talk with your care team.

Shine Forward with Dravet

Shine Forward with Lennox-Gastaut Syndrome

Dravet Syndrome Foundation

Lenox-Gastaut Syndrome (LGS) Foundation

Doose Syndrome Epilepsy Alliance

KCNT1 Epilepsy

Preventing Epilepsy Deaths

SLC6A1 Connect

STXBP1 Disorders

SYNGAP Research Fund

The Cute Syndrome Foundation

TSC Alliance

C.A.R.E. Binder

VIP Sibling

Browse the many resources available at Exploring Epilepsy Today.

GO TO RESOURCES
  •  
  •  

Adverse events and product quality complaints related to a UCB product may be reported via e-mail.
Email: DS.USA@UCB.com
Phone: +1-844-599-2273

Exploring Epilepsy with the associated logo is a registered trademark, and EpilepsyAdvocate™ is a trademark, of the UCB Group of Companies.

© 2024 UCB, Inc., Smyrna, GA 30080. All rights reserved.

All information on this site is covered by our Privacy Policy.

US-DA-2200085

  • Legal Notice
  • |
  • Privacy Policy