4 Things to Remember About Your Role

Being a caregiver is about staying informed, being organized, and having a lot of patience. Even if you don’t have those traits, there are still plenty of skills you can practice to give the person you are caring for with epilepsy the best care you can.

If you are ever feeling lost, remember these 4 things to get your mind back on track:

  • 1

    Partner with their doctor in treatment decisions

    • It is important that you feel involved in choosing the right treatment
    • The information you write down and share can be useful when making decisions about your loved one’s treatment
    • Ask questions to understand the benefits and side effects of epilepsy medications or other treatments
  • 2

    Look out for the well-being of your loved one

    • When patients are diagnosed they often feel angry, frustrated, or depressed, and they are likely to need a lot of your support to process this news
    • Mood changes may be a side effect of seizure medication; be patient and encourage them to talk about their feelings. Counseling may also help
    • Talk with their doctor if something about their emotions doesn’t seem right; the doctor may change the amount or type of medication
  • 3

    Get involved

    • Help them get involved in community activities, physical fitness, or sports that are safe for those with epilepsy (tennis, volleyball, jogging, basketball, hiking, and golfing are good)
    • Encourage them to try things like at-home workouts or yoga classes, and to avoid sports that can be risky for those with epilepsy (soccer, hockey, karate, martial arts, football)
    • Sports that are more dangerous for those with epilepsy include rock climbing, scuba diving, and parachuting
    • Check with your doctor before trying a new sport or exercise
  • 4

    Work together as a team

    • Talk to your loved one about any concerns you have with their mental or physical health
    • Honesty is really important for good caregiver-patient and patient-doctor relationships
    • Encourage them to talk with an epilepsy specialist if their doctor is unable to answer their questions
Share these articles with your loved one to help support your role: